Sunday, 8 July 2012

No medicine? Hospital then.

OK, I'll admit it. It's ALL my fault.

I jinxed it, you see. By that I mean, I broke the spell of good luck we've had. I did what I promised myself I would never do, and talked about it. Or rather, wrote, about it. See my previous blog post Poorly Child at home.

That's the trouble with blogging I've found; sometimes words just slip out unintentionally. Over the past 7 years I have been very aware of how lucky we have been with regards health. I've purposefully never said it out loud to anyone, so I don't know what possessed me to write about it. Now I've 'gone and done it', and I'm just hoping I haven't opened the floodgates....

Anyhoo, I now know what happens when your child won't take medicine. It's really not much fun.

After a week of her being poorly with high temperatures and bad cough, I took Sasha to the doctor. The lovely doctor checked her out and suggested it was a chest infection, which Sasha should have anti-biotics for. She was also a little concerned about her high heart rate and so she called A&E, booking us in for a session.

We spent 5 hours there; Sasha was hot and drowsy the whole time. The doctor diagnosed tonsillitis and pneumonia.  

My poorly baby
After about 4 hours a cannula was inserted in her hand for the antibiotics to be dripped through. That makes it sounds nice and easy; believe me, it was anything but. It took all my strength to restrain Sasha as four nurses attempted this feat, and a solitary tear rolled down my cheek. The tear had nothing to do with the fact I was missing my elder daughter's last (and only) summer concert performance at infant school, but it is true that I was also sad about that.

We were thankfully allowed home at tea time, but left with instructions to return to the day ward the following day for a further injection of drugs. We did, and it was a much less pleasant experience than the previous day. Sasha was more aware of what was going on, although still quite poorly, and so did not want to be there. We had an appointment at 2pm but the drugs weren't ready and so we waited until 330pm for anything to happen. Then the nurse pushed the drugs through Sasha's hand rather than using the slower drip, and this obviously caused Sasha more discomfort. 

The nurse also spent a long time trying to register Sasha's blood pressure - first with a faulty/low battery machine and then with an adult manual one. Both of these caused Sasha even more distress and, coupled with the heat on the ward, caused Sasha to almost pass out and she drowsed again. All of this while we were sitting (yes, together, Sasha on my knee) either on a kiddy size chair in the playroom, or else on a slightly larger chair in the hospital corridor. Why we weren't offered a bed, I have no idea. I was too tired to ask.

They kept us even longer though, as Sasha's heart rate was still above normal, and so they weren't allowed to sign her out. To get around this, the nurse waited until Sasha drowsed and then checked again - at which point the heart rate had obviously slowed enough to fall under the worry mark. Sadly communication then 'slipped' which meant another nurse came down the corridor and woke Sasha, checked again and found it was too high. Almost comedic, but really I was too tired to laugh. Not exactly feeling inspired by their methods so far, I decided to make a run for it after 3 hours and both Sasha and I were relieved to return home.

Over the weekend we have had a lovely community nurse visit us both days to give Sasha more drugs. She was thoughtful and understanding, and treated Sasha wanted to be treated, not how she wanted to treat her. Unfortunately for some reason we only got her services for the weekend and so tomorrow we have to return to the hospital ward for another top-up; HOPEFULLY the last one and we can get the cannula taken out.

I wonder if Sasha will realise in months to come that the moral of the story is that she should take her medicine off a spoon or syringe, like most other children?

I'm going to be optimistic and live in hope.






7 comments:

  1. My god, I can only imagine how tough the week has been for you. Well done for getting through it and staying positive. My son needs an inhaler, which he hates, and boy is it tough getting him to take it, so you have my sympathy. We've also been on the receiving end of poor hospital service, so again, well done you. Hope your poorly baby is well soon.

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    1. Thanks for this - read it yesterday and it did help cheer me up - bit of sympathy goes a long way ;) she's on the mend, yay!

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  2. I was going to say I know what you feel like, but I don't really because I don't have an autistic daughter and I wouldn't presume to understand how it feels and how you've coped. But I do know what it feels like to have a very sick child in hospital and the trauma of having a drip fitted; my daughter was three and it took about 4 of us to hold her down. I still remember it to this day. It's worth it in the end to get them better! Sending a hug x

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    1. Thanks for your first point, which was beautifully put and means a lot. Sorry about your daughter too (though I assume she's OK now...?!). Yes it was distressing for both of us, but I do know lots of people have to go through a lot worse so I do try to keep perspective. Hard when you're sleep deprived though! thanks x

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  3. I hope today's hospital trip was a little better and I hope she's getting better and you don't have to go back. My daughter wouldn't take medicine when she was little. She was about 4 before we could get a spoon full of calpol into her. We couldn't hide it in drinks either because she only drinks water, she wouldn't and still doesn't touch juice or squash etc. We kind of took the same attitude as you had, but luckily we managed to escape having to end up with the drip. It is so hard, but it could have been so much less stressful if the hospital and nurses had been more understanding. Hopefully even with being on the spectrum she will have a little bit more understanding of the need to take medicine as she gets a bit bigger. We also found with my daughter that trying with the spoon was much more successful than the syringe. I think as they get older the syringe just seems more scary. xx

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    1. Thanks. Still can't rave about the hospital day ward service sadly - they tried to inject more anti-b's but it was obviously hurting Sasha for some reason, so they pretty much gave up and agreed that as she seemed much better she could probably do without! So they took the cannula out, yay.
      Thanks for the tip re spoon over syringe, I wasn't sure which way to go but that's good advice. Of course there's no guarantee still that she'll agree in future, but I won't let her forget this experience that's for sure!!

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  4. oh steph how rough!
    BB takes meds really well but only because she has since she was 6 months old!!!!

    Hope she learns how to take them so you dont have to go back to a and e again.... xxx

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Go on, say it.... you know you want to! I love any comments....

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