Steph's Two Girls: Phew. It's not so bad after all.

Wednesday, 1 August 2012

Phew. It's not so bad after all.

Imagine my surprise and horror when I was given this handwritten note by Tamsin:

'Mummy I know we are young and you may love me but I just can't be with you any more'

If it wasn't for the next word, I'd have been very upset.

'Alejandro.'

I remember when I used to write down song lyrics to help memorise them too

3 comments:

Lizbeth1 August 2012 16:51
Hahaha!!!
ReplyDelete
jazzygal2 August 2012 23:45
Phew!! Thank God for that!

xx Jazzy
ReplyDelete
Michelle Twin Mum9 August 2012 20:47
Phew, had you worried for a moment! Hope you are hvaing a good summer hols. Mich x
ReplyDelete

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Go on, say it.... you know you want to! I love any comments....

What is autism?

'Autism is a lifelong developmental disability that affects the way a person communicates and relates to people around them. People with autism have difficulties with everyday social interaction'.

'Autism is a complex developmental disability involving a biological or organic defect in the functioning of the brain'.
(NAS)

Statistics now say 1 in 100 children have autism; only 1 in 4 of those is a girl.

What is PDA (Pathological Demand Avoidance)?

According to the NAS (National Autistic Society) website, the main features of children with PDA are:

obsessively resisting ordinary demands
appearing sociable on the surface but lacking depth in their understanding (often recognised by parents early on)
excessive mood swings, often switching suddenly
comfortable (sometimes to an extreme extent) in role play and pretending
language delay, seemingly as a result of passivity, but often with a good degree of 'catch-up'
obsessive behaviour, often focused on people rather than things.

You can read about this in a bit more detail (but nice simple language!) by clicking here. The bit that resonates most with me is:

'People with PDA are often very sociable and can display degrees of empathy previously not thought to be consistent with autism. Sometimes it seems that they are able to understand other people at an intellectual level but not at an emotional one. However, despite their use of social niceties, their social interaction is very often flawed by their inability to see the bigger picture, their lack of boundaries and their desire to be in control of the situation. They often understand rules but don't feel they apply to themselves. As children, this can lead to playground peer group difficulties. One parent described how "to other children he will happily act as if he was their mother - 'have you washed your hands' or 'don't put your elbows on the table' - but he doesn't have a sense of needing to follow the same rules."'

Why blog?

Autism is a hidden disability. I think a lot of people don't really know much about autism. That included myself before we were given this diagnosis for Sasha. So blogging is for me a small way of spreading the word. Autism is not a bad word, but something that is still rarely talked about despite the recorded increase in diagnosis. Some people who I mentioned our diagnosis to said 'oh yes, I've seen a television programme on autism, but Sasha's nothing like that'. Well no, she's not severly autistic, but it's a wide spectrum and affects each individual in a different way. I know there's a lot of people out there with bigger challenges in life and I have no idea how they cope. I'm just grateful that I have support from good family and friends, and that we have two beautiful girls who make us laugh (and sometimes cry!) in different ways every day.

Steph's Two Girls

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Wednesday, 1 August 2012

Phew. It's not so bad after all.

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